I went into remission after the first week... 17 replies

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Covin Narcissus

Love is all.

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29th July 2003

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#1 11 years ago

[SIZE="1"]I was admitted back into the hospital early Friday morning because I had a fever of 104, and was only released today. It's pretty scary when you have a high fever and no absolutely no immune system to fight off anything. The fevers came and went but they never really did figure out what sort of infection or illness I had contracted, so they said it was probably because of the chemo (which I had last received two weeks ago). Anyway, before I was let go I got to meet the young man in the room next to me. He was 18, bald (just like me), tons of piercings, with Hodgkin's disease and (or so he told me) a tumor that was over 5 inches big in his chest. We got to talking and he said he was going for a bone marrow transplant, just like me... and even stranger was that two of his sibilings matched him perfectly, just like me!

We got to talking more about how we were first diagnosed, how nauseous the chemo made us, how long we've been there, etc. He was completely resistant to the chemotherapy, even the radiation therapy, and was scheduled for a bone marrow transplant before I was even diagnosed with AML (the BMT is a last resort for him). Different nurses and intern doctors would sit down with us for a few minutes and join in our conversation, so when he would talk about how there's a possibility he could never have his own children, a nurse quickly responded that I possibly couldn't either from all of my chemotherapy. He started talking about how there was only a 75% cure-rate for him and, almost competitively, I said that I only had a 50% chance.

The thing that surprised me the most in our conversation was how serious my cancer was. He had had months of radiation before even being considered for a bone marrow transplant, and yet... for me it something I was told I had to have after my first month of being diagnosed. Lucky for me, both of my sisters matched - perfectly. There's only a 25% chance that one will match at all... and I have two that match me perfect (6/6). That must be a sign, right? I started doing more research on my diagnosis and found that the median age for AML (Acute Myelogenous Leukemia) is 65! I must be a very special exception.

Anyways, I don't want everyone to respond to this topic with "get well soon" and have a big pity party, so please... don't post anything like that, although I do very much appreciate your guys' support. I posted this mainly because I find what I have to be fascinating, it sucks that it's happening to me but I'm fighting the good fight and there's nothing more I could do. I think I mostly would like you all to ask me about AML, it's an interesting subject that not many people know about.[/SIZE]




Red Menace

SCHOFIELD DID 4/30

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10th August 2004

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#2 11 years ago

When you first said you had leukemia, I started doing some reading, wikipedia mostly, and they mention some possible causes, so I was wondering if your doctors understood why you got AML? Did you have any blood disorders or the like? Since, like you said, you don't seem to fit the profile. And even though you said not to, you can beat it, statistics mean nothing.


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Covin Narcissus

Love is all.

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29th July 2003

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#3 11 years ago

[SIZE="1"]I had a clean bill of health before all this. It was very sudden when I was diagnosed.

& no, I didn't spend my free time swimming in a vat of radioactive material.

I should know better then to look at the statistics anyways... because there's so many more factors that kick into everything.[/SIZE]




MrFancypants Forum Admin

The Bad

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7th December 2003

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#4 11 years ago

You said you don't want to read this kind of post, but maybe you should just think about it as a sort of moral-support medicine :)

So yes, it may be unlucky that you got AML at such a young age, but I'm sure this also increases your chances to get rid of it. Keep fighting the good fight, I know from experience with close relatives that it's easy to say for someone who doesn't know about the therapy and about how it feels when a success in the treatment turns out to be only temporary, but also that it's important to keep fighting. So don't worry too much about statistics, as Red Menace said.




Lyon

90% sarcastic

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8th July 2003

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#5 11 years ago
Red Menace;3858441When you first said you had leukemia, I started doing some reading, wikipedia mostly, and they mention some possible causes, so I was wondering if your doctors understood why you got AML? Did you have any blood disorders or the like? Since, like you said, you don't seem to fit the profile. And even though you said not to, you can beat it, statistics mean nothing.

Exactly. Never look at statistics. This is especially important for Knives to take note of as well, seeing as that 90% of AML patients are over 60, and can't handle the heavy treatment that she is getting.

It's also worth noting that these silly statistics include people who don't even bother having treatment (usually the elderly who see no beneficial means) and people who checked themselves out of hospital before having follow up treatment.

These statistics aren't much to go by, because nearly all cases of AML and other Leukemias are different. Just because statistics say a 50% (65% with transplant) cure rate doesn't mean a person has a 50%/65% chance to be cured. From how well Knives has responded to the treatment, her physical condition, and age, her chances are likely higher, as these are all important factors in prognosis.




Nusentinsaino

A new sense of nuisance.

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8th December 2003

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#6 11 years ago

Right, statistics mean nothing... they always ask fewer than 100 people to make a percentage.




Covin Narcissus

Love is all.

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29th July 2003

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#7 11 years ago

[SIZE="1"]

Nusentinsaino;3859313Right, statistics mean nothing... they always ask fewer than 100 people to make a percentage.

Actually, there's about 13,000 people diagnosed with AML each year, and only 500 of those are young people. Chhhhyeah, when it comes to cancer, you're just another statistic.[/SIZE]




Pb2Au

Droolworthy

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4th October 2004

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#8 11 years ago
Nusentinsaino;3859313Right, statistics mean nothing... they always ask fewer than 100 people to make a percentage.

The sampling size, if the study is correctly done, is usually less than 100 and can still produce very accurate cross-sections of the population. Statistics do mean a lot. Echoing Fancypants, this is the 'best' time in your life to get leukemia. You're young and strong enough to fight this off with treatment, you have two sisters who match you for transplants, and a positive outlook on the whole process. You seem pretty confident you're going to make it through, and from what I've heard (I can't pretend to have had a disease nearly as serious) that's half the battle.




do_NOt_ENTRY

******

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31st January 2006

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#9 11 years ago

Please change your font. It's too small and annoying to read.




Flodgy

I'm way cooler than n0e (who isn't though?)

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27th May 2004

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#10 11 years ago
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Please change your attitude. It's annoying and contributes nothing.

I understand what you're getting at Knives.. but hell. 6/6? That's awesomely lucky. Things will go fine anyways, ignore the statistics, all that matters is how you're going, and by the sounds of it. Quite well!




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